Jul 07
Sometimes you get dealt things that are harder than you expected.
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First!
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Parenting seems hard. I don’t plan on ever having kids. They scare me.
Scott, All of us here at ELR and The Instance are praying for your daughter, you and Kim. Please let us know if there is anything we, as a community, can do to help. I know I speak for all us when I say we will be there for you.
Hi Scott! Hope everything turns out fine, one wise man told me “Worry never helped anyone” and I try to live by that… BUT when it comes to my kids it’s hard not to worry when you love and care so much. My thoughts goes out to you and your family. /David (Moist)
Life really is a curve pitcher for sure…
I understand Mr. Johnson, my autistic cousin just had done the same tests (MRI and EMG) because of a seizure at his classroom. He is also going through puberty. Hope she is doing better now, and hopefully will pass with time after puberty settles in.
On the bright side she can count with great parents because you are not taking the easy (read medicated) way out. My cousin was not that lucky since his mother could not care less and medicated him at the first chance.
It’s never easy to see our loved ones suffer and the best we can do is support them and give them strength
Good luck, Scott
My wife and I will be celebrating our 1 year anniversary in a couple of weeks. Unfortunately, the last 2 months have been marked with an unexpected (but joyous) pregnancy and then a miscarriage. We, too, understand that while this is a huge challenge for us, we are so blessed. There are so many others with greater challenges than our own. That being said, when you spoke of “times that test you,” you were speaking my language. I have been so frustrated lately that there’s nothing I can do to change things. It’s hard to see someone you love going through something so hard. I know I feel that way for my wife, who is a strong, independent adult. I can only imagine how much deeper it must be concerning your child. I’ll definitely be praying for your family as you seek guidance, patience, wisdom, & peace.
From what you describe a possible medication would be anti-epileptics.
My girlfriend has taken those for close to 7 years because of seizures. They were during the day which was getting dangerous after she smashed through a side table once. She has been ‘clean’ and seizure free for several years now and she’s been feeling a lot better without the meds than with them.
So I agree with you on the non-medication strategy. If the effects are limited as you describe you may indeed find that she’ll grow out of it.
I have had this or something similar all my life on and off (I am about your age), I never really thought about it much. It also never had any impact on my life. Now that I think of it, I did not have one for at least a year, I think. But as I said, I have lived with it all my life and it was never a serious problem, I did not even talk to anyone about.
Hey, I told you DR was fun!
I didn’t really like Dungeon Runners. I enjoyed it for about an hour and a half, then grew bored with the concept and gave it up.
Hope everything goes better with your daughter. I know how it is to go through things like that. My thoughts are with you guys.
Kids are a parent’s greatest treasure. That’s why I’m so scared about having them, because I want the be the best father I can and I’m not sure if I can do it.
Scott! That is a picture of Kim.
All the best to your daughter and family.
We as a family wish you the strength and faith to overcome these temporary complications.
Being a father of a baby girl myself I send you all the empathy I can express from the heart of Europe!
at least she’s dmiling in that picture..
hope it turns out good
Tough situation, and only one that a parent can understand. We have to get my daughter tested each year to see if she’s developed Celiac Disease like my wife (my son’s genetic test last year turned out negative, so he never will get it, but my daughter may). You want to do everything and live your life to protect these innocent children, but sometimes nature just has a way of turning up something odd that you can’t protect them from.
You show confidence and strength, and they’ll be stronger as a result.
To those who are not sure they would be good parents due to their fears: Because you have these fears, you would be GREAT parents… and kids are totally worth any fear. Love outweighs all else.
As for meds – there is nothing wrong with using them if there is a real benefit, and the side effects (if any) are minimal.
I am at work, so cannot download, but from what others have said, I can only guess what is going on.
I hope everything works out for you and your family, Scott.
My father has epilepsy, so I know how scary that can be.
@ HECTORtheTURTLE
My wife and I had two miscarriages until we finally had our first child, Eleri. It is a tough thing, losing a child that way. I hope that doesn’t sour the idea of having children in the future for you.
Scott, the simple fact that you’re showing love, compassion, sympathy and worry are amazing things that you give to your daughter (and your whole family), even if you can’t solve the problem. There are many people who go through life without anyone loving and worrying about them, that to be a part of a family that clearly has the closeness and feeling is a blessing in itself. Best wishes to your daughter and your family, I’m sure everything will turn out ok.
@HECTORtheTURTLE
My wife and I also dealt with the loss of a child through a miscarriage, so I can empathize with your situation and feelings. Keep your chin up, as we are now blessed with a beautiful set of twins (boy and girl). It will happen for you, and it will be all the more special for what you went through to achieve it. Best of luck to you!
*huge hugs*
Hey Scott,
Too tired to make this long but, after listening to the diary, your girl’s siezures sound managable w/o drugs, especially after hearing the side-affects of them. *eeeesh*
I hope not to be in the same situation but, if I was, I would just see how things go for the next few years.
Godspeed~
JD
I don’t agree with the “other people have it worse” thing. But that’s just me,
I do however completely agree with the no-medication stance. When you get out of this, you and your family and especially your daughter will be a much stronger person.
I’m not sure how things are there, but i say you should get a second opinion. Doctors seem trustworthy, but they can be full of crap sometimes. Just be on the safe side, is all i’m saying.
And on a less serious note, how many kids DO you have Scott?
Scott, all of this obviously is very hard. And I think, due to the awful side effects of having drugs that could help her, it seems that these don’t really do much except literally shake her up. And if it is puberty, no one really finishes until 18. And that is a while, but 8 months without an episode until now is pretty good, and like you said, it will be a bunch over the course of a few days, then it will stop.
Scott,
my prayers and thoughts go out to you and your family. This thing with your daughter seems pretty stressful, but im glad to see how you make her your priority. that makes me smile on the inside
I’ve noticed seizures being common in young girls – sometimes seeing it happen in highschool.
I’ve had two girlfriends who had seizures. One’s seizures were the result of cataplexy, and was treated. The other had a hemorrhage and died in her sleep, a week after her 15th birthday.
Luc: 3
Im sure she will be fine and they will eventually go away. Best of luck though.
My youngest sister had similar seizures when she was young. She had her last one in her late teens more than twenty years ago. None of her children have had the problem. Just a bit of anecdotal evidence.
You and yours are in my thoughts. Take care.
Daughter: Daddy can i have $500 for no reason?
Scott: Sure.
Son: Daddy can i have some money?
Scott: (SMACK) WHAT DO I LOOK LIKE? A ATM!? GET OUT OF HERE!
Double huge Tauren sized *Hugs* Scott!
You and your family are always in my prayers sir!
A father being protective of his daughter(s) is completely normal.
Anything else would be weird.
Sounds like your daughter is handling it well, i know a few people with seizures and the hard part seems to be that others don’t understand what it’s like and make fun of them or treat them badly. Medication that causes mood swings, in a teen ager?? That’s double trouble.
About Dungeon Runners, i’ve been telling people how awesome this game is since it came out, and if you want to subscribe, pick up the retail box, it has six month of subscription with it for only $20, so it’s even cheaper. Plus you get a Bling Gnome.
None of us can truly know the situation as you do. Listen to your own thoughts.
Patience is needed. Although it seems like forever, it hasn’t been that long. I too am certain that this issue will resolve itself in time.
Is that your daughter in the photo?
She’s hot, hook me up man.
Hang in there dude. We have a 14 year old son with some fairly signifigant physical and mental challenges (cerebral palsey and autism) and dealing with them can sometimes be very daunting and depressing. The only thing I can tell you is take delight in all the great things about your children – make those things your focus and the other things will seem much more managable. I was watching Daredevil the other day with Joshua and he comes out with, “that Elektra character is good to look at.” Ahhh – puberty, ain’t it grand!